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    NICU to Nonprofit: A CHD Parent's Journey
    SH1
    24:58

    NICU to Nonprofit: A CHD Parent's Journey

    Advocacy & Nonprofits

    What Good vs Bad CHD Care Really Looks Like
    Ep 1
    42:06

    What Good vs Bad CHD Care Really Looks Like

    Patient Stories

    The 1952 Surgery That Changed Heart Care
    BC1
    25:00

    The 1952 Surgery That Changed Heart Care

    Medical History

    Latest

    Climbing El Capitan with a Mechanical Heart Valve
    Ep 7
    43:24

    Climbing El Capitan with a Mechanical Heart Valve

    Patient Stories

    "We're a Nonprofit Now. What Do We Do?"
    SH2
    36:01

    "We're a Nonprofit Now. What Do We Do?"

    Advocacy & Nonprofits

    Raw Advocacy & The Subtle Campaign That Saved Lives
    Ep 3
    23:35

    Raw Advocacy & The Subtle Campaign That Saved Lives

    Advocacy & Nonprofits

    All Episodes

    What Good vs Bad CHD Care Really Looks Like
    Ep 1
    42:06

    What Good vs Bad CHD Care Really Looks Like

    Patient Stories

    Episode 2: Why Advocacy Matters
    Ep 2
    33:53

    Episode 2: Why Advocacy Matters

    Advocacy & Nonprofits

    Raw Advocacy & The Subtle Campaign That Saved Lives
    Ep 3
    23:35

    Raw Advocacy & The Subtle Campaign That Saved Lives

    Advocacy & Nonprofits

    Episode 4: An International Comparison
    Ep 4
    31:30

    Episode 4: An International Comparison

    Patient Stories

    Episode 5: Our Shared Trauma
    Ep 5
    37:34

    Episode 5: Our Shared Trauma

    Patient Stories

    Finding Someone Who Gets It: CHD Peer Mentors
    Ep 6
    49:17

    Finding Someone Who Gets It: CHD Peer Mentors

    Support & Resources

    Climbing El Capitan with a Mechanical Heart Valve
    Ep 7
    43:24

    Climbing El Capitan with a Mechanical Heart Valve

    Patient Stories

    Episode 8: Waiting for a Heart
    Ep 8
    41:04

    Episode 8: Waiting for a Heart

    Patient Stories

    Episode 9: Close to the Chest
    Ep 9
    47:26

    Episode 9: Close to the Chest

    Patient Stories

    The App That Puts CHD Patients in Control
    Ep 10
    50:15

    The App That Puts CHD Patients in Control

    Support & Resources

    Informed Consent vs. Medical Paternalism: A CHD Reproductive Rights Story
    Ep 11
    58:00

    Informed Consent vs. Medical Paternalism: A CHD Reproductive Rights Story

    Patient Stories

    Bonus: Peer Support Program
    Bonus
    44:20

    Bonus: Peer Support Program

    Support & Resources

    NICU to Nonprofit: A CHD Parent's Journey
    SH1
    24:58

    NICU to Nonprofit: A CHD Parent's Journey

    Advocacy & Nonprofits

    "We're a Nonprofit Now. What Do We Do?"
    SH2
    36:01

    "We're a Nonprofit Now. What Do We Do?"

    Advocacy & Nonprofits

    The 1952 Surgery That Changed Heart Care
    BC1
    25:00

    The 1952 Surgery That Changed Heart Care

    Medical History

    Longest Lived Open Heart Patient: Part 2 - What Came Next
    BC2
    21:12

    Longest Lived Open Heart Patient: Part 2 - What Came Next

    Medical History

    Longest Lived Open Heart Patient: Part 3 - Why It Matters
    BC3
    35:05

    Longest Lived Open Heart Patient: Part 3 - Why It Matters

    Medical History

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    The 1% Heart

    CHD Stories & Advocacy

    Real stories from the congenital heart disease community. Not awareness campaigns—actionable insights from pioneers navigating care, building organizations, and proving what's possible.

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    Disclaimer: Nothing in our episodes constitutes medical advice. These are personal experiences and stories. This podcast contains discussions of medical trauma. Listener discretion advised.