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Stronger Hearts: Part 2 - It Takes a Team
How do you build a nonprofit while working 60-hour weeks and raising a baby with HLHS?In Part 2, Connor Hill breaks down exactly what Stronger Hearts Foundation has accomplished in just a few months —...
Stronger Hearts: Part 1 - Building a Foundation from the NICU
What happens when your child's heart diagnosis becomes the catalyst for helping hundreds of other families?Connor Hill, co-founder of the Stronger Hearts Foundation, joins the show to share his family...
The Longest Lived Open Heart Patient: Part 3 - Why It Matters
The ripple effects of one 1952 surgery are still being felt today. In this final part, we explore the awareness gap that leaves thousands of CHD patients without proper care, the difference between co...
The Longest Lived Open Heart Patient: Part 2 - What Came Next
What happens after you survive a surgery that wasn't supposed to work? Bill Causey didn't just survive - he thrived. Law school, 34 years teaching at Georgetown, marriage, family, and a career that im...
Longest Lived Open Heart Patient: Part 1 - The Surgery That Changed Everything
In 1952, a three-year-old blue baby was given weeks to live. On Dr. Alfred Blalock's 54th birthday, he and his team performed a groundbreaking surgery that would change cardiac care forever. 73 years ...
Episode 11: Women's Health & CHD
Can medical caution cross the line into control for women with congenital heart defects? Jillian Tait shares her pregnancy nightmare that turned collaborative care into a medical control battle, while...
Episode 10: EmpowerMyCH - The App Built for Us
Meet the groundbreaking app putting CHD patients in control of their lifelong care. Dr. Anu Agarwal (UCSF ACHD Research Director), Project Lead Joe Valente, and Patient Engagement Chair Lindsay Alano ...
Episode 9: Close to the Chest
How do you transform 15+ heart surgeries into powerful advocacy? Special education teacher and Nashville Walk planning committee member Brook Dorris shares her extraordinary journey with double inlet ...
Bonus: Peer Support Program
Why peer mentorship changes everything for CHD patients and families. Karla Deal, ACHA's Heart to Heart coordinator and CHD patient herself, explains how connecting with someone who truly 'gets it' tr...
Episode 8: Waiting for a Heart
What's it really like waiting for a heart transplant while juggling work and life? Bailey Vincent, living with Epstein's Anomaly and Wolf-Parkinson-White syndrome, provides a candid look into heart fa...
Episode 7: The Mountains We Climb
Can you climb El Capitan with a mechanical heart valve? English teacher and rock climber Bob Smith proves that CHD doesn't define your limits. Since his aortic valve replacement, he's conquered Mt. Ra...
Episode 6: Not Alone Anymore
Why peer mentorship matters in the CHD community. Meet Rick Puder (program veteran) and Jennie Fox (former mentee turned mentor) from ACHA's Heart to Heart Peer Support Program. Learn how connecting w...
Episode 5: Our Shared Trauma
How does pediatric medical trauma shape mental health in CHD patients? Registered clinical counselor and CHD patient Meghan Stewart of Hands to Heart Therapy explores the intersection of congenital he...
Episode 4: An International Comparison
How does CHD care differ between countries? Special crossover episode with Stewart Liang from Heart2Hearts Podcast exploring the stark differences between US and international congenital heart defect ...
Episode 3: How They See Us
Social media's powerful role in CHD advocacy. Bethany and Hannah Keime, founders of HeartCharged and CHD Patients, discuss how online platforms are transforming awareness, community building, and pati...
Episode 2: Why Advocacy Matters
The power of organized CHD advocacy. Mark Roeder, CEO of the Adult Congenital Heart Association, shares insights on effective patient advocacy, healthcare policy impact, and why collective voices crea...
Episode 1: Our Lived Experiences
Diving deep into personal CHD journeys. Host Drezden Plotkin and advocate Aliza Marlin candidly discuss diagnosis, treatment, and navigating life with congenital heart defects. Set the foundation for ...
The 1% Heart - The Teaser
Coming out next month! In the meantime, you can check us out at ww.onepercentheart.com and follow us on Instragram @theCHDpodcast. The 1% Heart is a podcast inspired by the 1% of people born with a co...